Previous researchers had proved that parenting stress in parents of children with autism spectrum disorder (ASD) is significantly higher as compared to parents of children with typically developing (TD), and in other developmental disabilities. Therefore, this study aimed to determine the relationship between social support and parenting stress among parents of children with autism spectrum disorder in Selangor. A total of 75 respondents participated in this study which has been identified through a purposive sampling technique from four autism centers in Selangor. The data for this study was collected by using a self-administered questionnaire. Multidimensional Scale of Perceived Social Support (Zimet et al., 1988) and Autism Parenting Stress Index (Silva & Schalock, 2012) were used to determine the relationship between social support and parenting stress. The findings revealed that social support has a negative correlation with parenting stress. It is proven that higher social support is important to reduce stress for parents of children with ASD. Thus, more efforts should be made to support this community.
Keywords: Parents, Children, Social Support, Parenting Stress, Autism Spectrum Disorder
Abidin, R. R. (1995). Parenting stress index. Psychological Assessment Resources, Inc. (3rd ed.). Odessa.
Altiere, M. J., & von Kluge, S. (2009). Searching for acceptance: Challenges encountered while raising a child with autism. Journal of Intellectual and Developmental Disability, 34(2), 142-152.
Bronfenbrenner, U. (1995). Developmental ecology through space and time: A future perspective. In P. Moen, G. H. Elder Jr., & K. Luscher (Eds.), Examining lives in context: Perspectives on the ecology of human development (pp. 619–647). Washington, DC: American Psychological Association. doi:10.1037/10176-018.
Cohen, S. (2004). Social relationships and health. Am. Psychol. 59, 676–684. doi: 10.1037/0003-066X.59.8.676
Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266-280.
Dardas, L. A., & Ahmad, M. M. (2015). Coping strategies as mediators and moderators between stress and quality of life among parents of children with autistic disorder. Stress and Health, 31(1), 5-12.
Davis, N. O., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278.
Dunst, C. J., Trivette, C. M., & Cross, A. H. (1986). Mediating influences of social support: Personal, family, and child outcomes. American Journal of Mental Deficiency, 90(4), 403–417
Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and well-being in mothers of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(10), 1274-1284.
Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. H., & Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism, 13(4), 375-387.
Estes, A., Olson, E., Sullivan, K., Greenson, J., Winter, J., Dawson, G., & Munson, J. (2013). Parenting-related stress and psychological distress in mothers of toddlers with autism spectrum disorders. Brain and Development, 35(2), 133138.
Falk, N. H., Norris, K., & Quinn, M. G. (2014). The factors predicting stress, anxiety, and depression in the parents of children with autism. Journal of Autism and Developmental Disorders, 44(12), 3185-3203.
Firth, I., & Dryer, R. (2013). The predictors of distress in parents of children with autism spectrum disorder. Journal of Intellectual and Developmental Disability, 38(2), 163-171.
Geens, N., & Vandenbroeck, M. (2014). The (ab) sense of a concept of social support in parenting research: a social work perspective. Child & Family Social Work, 19(4), 491-500.
Hassall, R., Rose, J., & McDonald, J. (2005). Parenting stress in mothers of children with an intellectual disability: The effects of parental cognitions in relation to child characteristics and family support. Journal of Intellectual Disability Research, 49(6), 405-418.
Hayes, S. A., & Watson, S. L. (2013). The impact of parenting stress: A meta- analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629-642.
Ilias, K., Liaw, J. H. J., Cornish, K., Park, M. S. A., & Golden, K. J. (2017). Wellbeing of mothers of children with “AUTISM” in Malaysia: An interpretative phenomenological analysis study. Journal of Intellectual & Developmental Disability, 42(1), 74-89.
Lai, W. W., Goh, T. J., Oei, T. P., & Sung, M. (2015). Coping and well-being in parents of children with autism spectrum disorders (ASD). Journal of Autism and Developmental Disorders, 45(8), 2582-2593.
Laili, N. binti, Abdullah, W. A. W., Toran, H., Amin, A. S., & Alias, R. (2021). Challenges and Support for Parents of Children with Autism Spectrum Disorder at Work. International Journal of Academic Research in Business and Social Sciences, 11(12), 655-669.
Lasgaard, M., Nielsen, A., Eriksen, M. E., & Goossens, L. (2010). Loneliness and social support in adolescent boys with autism spectrum disorders. Journal of autism and developmental disorders, 40(2), 218-226.
Lee, J., Ong, S., Lee, V., & Fairuz, N. (2017) Parenting Stress among Malaysian Parents of Children with Autism Spectrum Disorder (ASD). Medicine & Health, 2(1), 42-55
Lim, J. M. (2015)., Living with autism in Malaysia. Institute for Democracy and Economy Affairs (IDEAS), 4, (7-10) https://www.ideas.org.my/publications-item/policy-paper-no-21-living-with-autism
Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702-711.
Manan, A. I. A., Amit, N., Said, Z., & Ahmad, M. (2018). The influences of parenting stress, children’s behavioral problems and children quality of life on depression symptoms among parents of children with autism: preliminary findings. Malaysian Journal of Health Sciences,16
McStay, R. L., Dissanayake, C., Scheeren, A., Koot, H. M., & Begeer, S. (2014). Parenting stress and autism: The role of age, autism severity, quality of life and problem behaviour of children and adolescents with autism. Autism, 18(5), 502-510.
Miranda, A., Tarraga, R., Fernandez, M. I., Colomer, C., & Pastor, G. (2015). Parenting stress in families of children with autism spectrum disorder and ADHD. Exceptional Children, 82(1), 81-95.
Phetrasuwan, S., & Shandor Miles, M. (2009). Parenting stress in mothers of children with autism spectrum disorders. Journal for Specialists in Pediatric Nursing, 14(3), 157-165.
Rea-Amaya, A. C., Acle-Tomasini, G., & Ordaz-Villegas, G. (2017) Resilience Potential of Autistic Children’s Parents and Its Relationship to Family Functioning and Acceptance of Disability. British Journal of Education, Society & Behavioural Science, 20(1): 1-16,
Rivard, M., Terroux, A., Parent-Boursier, C., & Mercier, C. (2014). Determinants of stress in parents of children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 44(7), 1609-1620.
Sharif, M. H., & Jamil, N. A. (2019). Cabaran Ibu Bapa Bersama Kanak-kanak Kecelaruan Spektrum Autisme (ASD): Tinjauan Literatur. Malaysian Journal of Social Science,4(1), 33-43
Shiba, K., Kondo, N., & Kondo, K. (2016). Informal and Formal Social Support and Caregiver Burden: The AGES Caregiver Survey. Journal of Epidemiology, 26(12), 622-628.
Silva, L. M., & Schalock, M. (2012). Autism parenting stress index: initial psychometric evidence. Journal of Autism and Developmental Disorders, 42(4), 566-574.
Smith, L. E., Greenberg, J. S., & Seltzer, M. M. (2012). Social support and wellbeing at mid-life among mothers of adolescents and adults with autism spectrum disorders. Journal of Autism and Developmental Disorders, 42(9), 1818-1826.
Stuart, M., & McGrew, J. H. (2009). Caregiver burden after receiving a diagnosis of an autism spectrum disorder. Research in Autism Spectrum Disorders, 3 (1), 86-97
The New Straits Times. (2018). https://www.nst.com.my/lifestyle/sunday-vibes/2018/04/354620/autism-not-impenetrable
Ubeh, C., Bahari, F., & Voo, P.S.K (2017). Subjective Wellbeing among parents of children with learning disabilities: the effect of religious commitment, parents of hope for child and social support. Jurnal Psikologi Malaysia, 31(2), 45-56
Wahab, R., Fahmy, M. K. A. M. F., Ibrahim, S. A., & Philip, W. (2022). Social Support and Stress among Parents with Autism Spectrum Disorder Children. Environment-Behaviour Proceedings Journal, 7(20), 449–454.
https://doi.org/10.21834/ebpj.v7i20.3409.
Weiss, J. A., Robinson, S., Fung, S., Tint, A., Chalmers, P., & Lunsky, Y. (2013). Family hardiness, social support, and self-efficacy in mothers of individuals with autism spectrum disorders. Research in Autism Spectrum Disorders, 7(11), 1310-1317.
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52(1), 30–41. https://doi.org/10.1207/s15327752jpa5201_2